"Fighting for a miracle: Course designer David Kahn and his wife, Karen, search for strength in the most daunting battle imaginable"

Alan Shipnuck at Golf.com shares the heartbreaking story of Amelia and Makenzie Kahn, daughters of David and Karen who are battling one of the world's rarest disease for children.

Carve out a few minutes for this one. 

A Topgolf fundraiser for a research-based foundation related to Batten's Disease is this Monday. Shipnuck explains:

With such a tiny potential market, drug companies have little incentive to put resources into studying the disease and trying to develop a cure, or even ways to slow its symptoms. And so the Kahns are taking on this fight themselves, having formed the ForeBatten Foundation. "That golfy play on words with ‘fore' might be a little corny," says David, "but it speaks to our mission: Watch out, Batten."

This Monday, March 12, the ForeBatten Foundation will host its inaugural fundraiser at TopGolf in Scottsdale. The ambitious goal is to raise the $800,000 needed to fund a critical new research study. David has tapped his many friends and contacts in golf to assemble a dazzling array of auction items, including a pair of Berckmans Place tickets for the final round of this year's Masters; a dream trip for four to Bandon Dunes; tee times everywhere from Winged Foot to Riviera to Oakmont to Los Angeles Country Club; unique experiences, ranging from a private tennis lesson with Andy Roddick to a round of golf with Paige Spiranac; and a once-in-a-lifetime chance to play the Annenberg Retreat at Sunnyland Farms, the cultish, intensely private Dick Wilson design (restored in 2011 by Jackson Kahn) that has long been a private playground for ambassadors and Presidents.